{"id":13679,"date":"2025-04-28T16:24:55","date_gmt":"2025-04-28T21:24:55","guid":{"rendered":"https:\/\/uwm.edu\/socialwelfare\/?p=13679"},"modified":"2025-12-05T14:03:40","modified_gmt":"2025-12-05T20:03:40","slug":"uwm-professors-film-about-als-screens-at-milwaukee-film-festival","status":"publish","type":"post","link":"https:\/\/uwm.edu\/socialwelfare\/uwm-professors-film-about-als-screens-at-milwaukee-film-festival\/","title":{"rendered":"51ÁÔÆæ professor\u2019s film about ALS screens at Milwaukee Film Festival"},"content":{"rendered":"\n

By Alissa Mathison<\/p>\n\n\n\n

A film co-produced by Melinda S. Kavanaugh, professor of social work at 51ÁÔÆæ, will screen at the Milwaukee Film Festival<\/a>.<\/p>\n\n\n\n

LUKi & the Lights<\/a> was created to help children around the world understand ALS in an easily accessible way. The story follows the lovable robot LUKi as his mobility declines and he lives with an ALS diagnosis.<\/p>\n\n\n\n

Set in the colorful and bucolic environs of the Netherlands, replete with tulips and a windmill, the animated short film begins with a heartwarming scene of LUKi enjoying his day-to-day life of work and hobbies. Slowly, his functioning and mobility wane and an ALS diagnosis alters his life. He expresses anger, sadness and gradually relies on his friends for caregiving.<\/p>\n\n\n\n

Without using language \u2013 or humans \u2013 the film conveys the emotional and disruptive experience of going through a medical diagnosis. As lightbulbs flicker and LUKi\u2019s bright eyes fade, the letters ALS appear on screen.<\/p>\n\n\n\n

\u201cThere\u2019s no language \u2013 we did that on purpose so that kids around the world would be able to connect with and understand the story,\u201d Kavanaugh said.<\/p>\n\n\n\n

Global connection leads to film<\/h2>\n\n\n\n

Kavanaugh is one of the few researchers in the world who focuses on children in families living with and providing care for neurological disorders. Her young adult graphic novel about ALS and other motor neuron diseases has been translated into 13 languages.<\/p>\n\n\n\n

Sascha Groen and Anjo Snijders, both teachers in the Netherlands, created the story of LUKi to help explain ALS to their children after Anjo was diagnosed with the disease. They were familiar with Kavanaugh\u2019s graphic novel, \u201cReal Kids Talk About ALS,\u201d<\/a> which had recently been translated into Dutch. They reached out about bringing their concept to life.<\/p>\n\n\n\n

\u201cAt the time, I was the only person at the global level conducting research and building programs for children and youth in ALS or motor neuron diseases,\u201d Kavanaugh said. Groen explained her idea about a robot and their dream to work with a Hollywood animation studio.<\/p>\n\n\n\n

California-based studio Big Grin Productions<\/a> built out the storyline in the context of animation with Kavanaugh, Groen and Snijders involved every step of the way. The ALS Association<\/a> and the nonprofit Global Neuro YCare<\/a> funded the project.<\/p>\n\n\n\n

The film seamlessly integrates LUKi\u2019s story arc with information about ALS. Kavanaugh explains that they wanted to show ALS progressing and eventually affecting LUKi\u2019s whole body. Kavanaugh worked alongside  Groen, Snijders and Big Grin Productions to ensure a realistic portrayal of the disease in the film. Defining moments of the film include LUKi using a respirator and needing help bathing.<\/p>\n\n\n\n

\u201cThe other thing that we really wanted to show was caregiving. Showing progression and being honest with the disease,\u201d Kavanaugh said.<\/p>\n\n\n\n

Snijders died of ALS last year, but he got to see the film before he passed.<\/p>\n\n\n\n

The film, as well as a LUKi coloring book and materials for families and organizations, are available on the Global Neuro YCare website<\/a>.<\/p>\n\n\n\n

International reception<\/h2>\n\n\n\n

Luki & the Lights has appeared at film fests<\/a> across the world and was shortlisted for an Oscar in December 2024. Winning Best Animation US Short Film at the New York Animation Film Awards pushed the film into Oscar territory, Kavanaugh said.<\/p>\n\n\n\n

The film\u2019s awards include Best Family Film at San Jose International Short Film Festival, Fonderie Horne Youth Prize at Festival de Cin\u00e9ma International en Abitibi-T\u00e9miscamingue, Best Short Film for Animation at UK Film Studios, and the Will Vinton Animation Award at the 2024 Portland Film Festival, among others. It was also featured at Superfest Disability Film Festival, the longest-running disability film festival in the world.<\/p>\n\n\n\n

Screenings at the Milwaukee Film Festival<\/h2>\n\n\n\n

See LUKi & the Lights<\/a> during Shorts: Let\u2019s Get Animated<\/a> at the Milwaukee Film Festival.<\/p>\n\n\n\n

Tuesday, Apr 29 | 7:15 p.m. | Downer Theatre (South Cinema)
Friday, May 2 | 12:45 p.m. | Downer Theatre (South Cinema)
Monday, May 5 | 4:15 p.m. | Downer Theatre (North Cinema)<\/p>\n\n\n\n

The movie can also be viewed online<\/a>.<\/p>\n\n\n\n

<\/p>\n","protected":false},"excerpt":{"rendered":"

By Alissa Mathison A film co-produced by Melinda S. Kavanaugh, professor of social work at 51ÁÔÆæ, will screen at the Milwaukee Film Festival. 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